Jane Colby co-authored the largest study of ME/CFS (Journal of Chronic Fatigue Syndrome 1997) revealing that ME is the biggest cause of long term sickness absence from school. The school roll studied comprised 333,024 pupils and 27,327 staff.
Jane has been published in the Journal of Clinical Pathology, the British Medical Journal, The Lancet, the British Journal of Special Education, Special Children, other journals and the UK national press. As a member of the Chief Medical Officer's Working Group on CFS/ME, she made a major contribution to the children's chapter of the subsequent report (DOH 2002).
A former Head Teacher and now pro bono Executive Director of The Young ME Sufferers Trust (Tymes Trust) she gave advice to the UK Department for Education on the 2013 statutory guideline for Local Authorities on children unable to attend school for health reasons. She has prepared a 25 minute education webinar to assist families and professionals.
Jane prepared the questionnaire for the BBC Television Panorama programme on ME. She is a Fellow of the Royal Society of Arts and life member of the National Association of Head Teachers. In addition to other professional qualifications, she has a first class honours degree in religious studies and creative writing. Her short book Zoe's Win (for young people with ME) has a section for teachers. She edited Young Hearts, a book of inspirational poetry by children and young people with ME; published by Tymes Trust, it was launched at Warwick Castle by Terry Waite CBE, who also wrote the foreword.
In the 1980s, Jane was severely disabled with ME due to a virus related to polio. She can now manage some golf and is working on her handicap. It's a work in progress... like this book.